|
|
Post by dave1307 on Jul 29, 2011 3:32:30 GMT 10
Just wondering if anyone reading this site has pyroluria and what your symptoms were like and what treatments helped you and how you feel now.
|
|
|
|
Post by dave1307 on Aug 11, 2011 3:20:08 GMT 10
Well anyway, I did a test for pyroluria, so I am just waiting for the results in the next few days hopefully.
|
|
|
|
Post by Jurriaan Plesman BA (Psych), P on Aug 17, 2011 16:52:15 GMT 10
And how did te test turn out to be?
|
|
|
|
Post by dave1307 on Aug 18, 2011 1:40:33 GMT 10
Still waiting for the results actually, will update when I find out.
|
|
|
|
Post by dave1307 on Sept 30, 2011 1:36:27 GMT 10
Update: I tested negative for pyroluria, my test result came back at 11. Above 20 means there is a concern.
|
|
|
|
Post by studentofthegame on Oct 2, 2011 3:44:01 GMT 10
what made you take the test, was it recommended?
|
|
|
|
Post by dave1307 on Oct 2, 2011 5:53:37 GMT 10
Because it is a relatively common condition that is really treatable. So it's totally worth it to at least test for this. I found that my symptoms were closely related to those of low b6 and zinc, which is the result of pyroluria.
|
|
|
|
Post by studentofthegame on Oct 3, 2011 6:22:09 GMT 10
presumably topping up b6 and zinc is the answer then? or is it not always that simple
|
|
|
|
Post by dave1307 on Oct 3, 2011 14:10:03 GMT 10
Yeah man that's basically the treatment. With a few notables:
1) I think pyroluria treatment might also need other nutrients to support the b6 and zinc absorption and utility.
2) Pyroluria needs to be treated with very high levels of zinc and b6, as far as I know, which would probably be toxic for someone who doesn't have the condition.
|
|
|
|
Post by studentofthegame on Oct 6, 2011 7:15:47 GMT 10
i see. might seek a test for it myself. don't wanna leave any stone un-turned
|
|
|
|
Post by dave1307 on Oct 7, 2011 10:38:25 GMT 10
The test is the kryptopyrrole test.
|
|
|
|
Post by mysticsoul on Nov 6, 2011 8:53:23 GMT 10
I question the reality of this diagnosis so I collected enough urine to sent to 3 separate labs and to each lab under 2 to 4 different patient names.
I am a medical journalist so this was part of my work.
Not one of 9 tests matched and two of the same labs reported high numbers and with the same specimen also totally normal numbers. These were the three top labs in the USA.
|
|
|
|
Post by dave1307 on Nov 6, 2011 16:19:35 GMT 10
Well that's weird. I read about pyroluria in the book "mental and elemental nutrients" which is a really good book I think.
|
|
|
|
Post by mysticsoul on Nov 7, 2011 6:44:11 GMT 10
Might be a good book but unless the labs are credible the diagnosis in worthless
|
|
